We have tried everything, but haven't been able to cure

by brionic @, Thursday, December 06, 2012, 10:08 (4316 days ago)
edited by brionic, Thursday, December 06, 2012, 10:32

Dashiell. CT scans this week showed more masses. We are trying a carcinoma-focused treatment, and should be able to tell in two weeks if it has had any effect.

There are other alternative options, but time is not on our side. Pam and I are making plans for the short and midterm, to explore and celebrate with the boys, together. We want to delight Dashiell and offer him as many experiences as he desires.

Our eleven year-old has figured it out. Laying with him last night as he gasped and quietly wept was as hard as anything I have ever done. Pam spoke quietly, from the heart, as much to me as to Orson, about finding peace and letting go of fear.

I can't put anything else into words. A coordination of events going back several years has led to to wonder about things I cannot fathom.

Pam asked her friends not to write or say that they are sorry, because we have been the luckiest people in the world to enjoy this boy's awe and wonderment for five years. Every day has been a miracle.

We thank you all, again, for the many kindnesses that you have shown us, and for the strength that you have loaned to us.

Prayers for all, Brian. He will be OK...

by Boge Quinn, Thursday, December 06, 2012, 10:19 (4316 days ago) @ brionic

...safe in the arms of his parents, or in the arms of his Lord. The rest of you need our prayers and His strength, and you will continue to have both. God bless y'all.

...

by Rob Leahy ⌂ @, Prescott, Arizona, Thursday, December 06, 2012, 10:37 (4316 days ago) @ brionic

no words.

--
Of the Troops & For the Troops

... +1

by MR, Thursday, December 06, 2012, 11:47 (4316 days ago) @ Rob Leahy

no words just quiet outrage at the universe.

Amen Rob.

by Hoot @, Diversityville, Liberal-sota, Friday, December 07, 2012, 06:50 (4315 days ago) @ Rob Leahy

.....

You are strong and wonderful parents, and you are blessed to

by cable, Thursday, December 06, 2012, 11:12 (4316 days ago) @ brionic

have him, and he is extraordinarily blessed as well to have such parents as you. My heart is breaking for you all. I still have such searing [ and wonderful as well ] memories from pediatrics in medical school that i simply cannot even tell the stories nearly 40 years later.
God bless and keep you and Dashiell.... I know He will.

We have tried everything, but haven't been able to cure

by Charles, Thursday, December 06, 2012, 11:26 (4316 days ago) @ brionic

I long ago stopped trying to find the right words, or to give "buck up therapy". I will just say, you folks are on the right track and my thoughts and prayers are with you all. God bless...Charles

Prayers continue.... nm

by cubrock, Thursday, December 06, 2012, 11:34 (4316 days ago) @ brionic

ntxt

We can do nothing else and so we pray...

by Hobie ⌂ @, Shenandoah Valley of Virginia, Thursday, December 06, 2012, 11:48 (4316 days ago) @ brionic

.

--
Sincerely,

Hobie

Prayers continue.

by mcassill, Thursday, December 06, 2012, 12:01 (4316 days ago) @ brionic

.

Prayers most heartfelt for you all....

by John Meeker, Thursday, December 06, 2012, 12:41 (4316 days ago) @ brionic

and for the extra courage to your and wife to walk this mile.

We have tried everything, but haven't been able to cure

by Caz, Thursday, December 06, 2012, 14:08 (4316 days ago) @ brionic

Praying still...

tears and prayers here

by stonewalrus, Thursday, December 06, 2012, 16:07 (4316 days ago) @ brionic

Nm

I don't even know what to say other than I have prayed

by Jhenry, Thursday, December 06, 2012, 17:13 (4316 days ago) @ brionic

I try to put myself in your shoes to gain some perspective and even that is almost too much to bear. You are stronger than I am.

I continue to pray for Dashiel every day. I am sure he knows how much he is loved. I have tears in my eyes even typing this. I will continue to pray for peace and health.

still praying, Brian. God Bless

by AkRay, Thursday, December 06, 2012, 18:13 (4316 days ago) @ brionic

.

I will pray for him and think of him often tommorow

by Bob Hatfield @, Thursday, December 06, 2012, 18:29 (4316 days ago) @ brionic

ntxt

Prayer continues....

by Cherokee @, Medina, Ohio, Thursday, December 06, 2012, 18:58 (4316 days ago) @ brionic

nm

Please remember that there are those on this board...

by Byron, Thursday, December 06, 2012, 19:59 (4316 days ago) @ brionic
edited by Byron, Thursday, December 06, 2012, 20:16

Who have walked this path.

Please remember that pain shared is pain devided and that joy shared is joy multiplyed.

Surround yourselves with those you love, keep them close and keep talking to each other. Leave nothing unsaid.

You are in my families prayers.

Byron

Amen Byron

by Mark Stevenson, Thursday, December 06, 2012, 22:27 (4316 days ago) @ Byron

The only thing that kept me sane during those years when Tom was still alive and for the years after he shed his ruined body to go be with our heavenly father, was to remind myself that none of us leave this ball of mud alive, and the rewards in the next life are better than here.

There were times when I questioned God's plan and his intentions in allowing my son to have a disease that ensured a short lifespan. Prayer and honest loving talk with family is essential to keeping a family intact. The stress of this kind of situation can rip a family and marriage apart.

You and your family have our full prayer support.

Never forget that you are not alone in this. you have a loving family and friends here that care.

Mark

+1

by Bob Hatfield @, Friday, December 07, 2012, 03:58 (4316 days ago) @ Byron

n

Praying for all of you.

by Jared, Thursday, December 06, 2012, 20:48 (4316 days ago) @ brionic

Nt

Praying for all of you.

by BJ Snow @, Thursday, December 06, 2012, 21:37 (4316 days ago) @ Jared

Prayers continuing. Y'all are on my mind often. God bless you all.

As Hobie said...

by Catoosa, Thursday, December 06, 2012, 22:34 (4316 days ago) @ brionic

We can do nothing, so we pray. But praying is the best thing we CAN do when things are bad - for God's help, for strength, for courage to face whatever comes, and ultimately for His comfort and peace. I truly believe that God can do anything, but that we cannot know what His purpose may be sometimes. We can only trust Him.

May He bless and keep you all.

Amen...

by Hobie ⌂ @, Shenandoah Valley of Virginia, Friday, December 07, 2012, 07:56 (4315 days ago) @ Catoosa

.

--
Sincerely,

Hobie

We have tried everything, but haven't been able to cure

by Murphy @, Thursday, December 06, 2012, 22:59 (4316 days ago) @ brionic

Words, try as I may I can't find them.

Just please know you are in my heart, mind and prayers.


Murphy

Prayers contuall sent up.

by Drago, Friday, December 07, 2012, 00:26 (4316 days ago) @ brionic

God Bless the Codd family!

Brian, You are in my thoughts.

by TomC, High Ridge Missouri, Friday, December 07, 2012, 09:48 (4315 days ago) @ brionic

.

Prayers continuing....

by Brian A, Friday, December 07, 2012, 11:24 (4315 days ago) @ brionic

nm

Prayers continuing....

by madbohemian, Friday, December 07, 2012, 11:51 (4315 days ago) @ Brian A

Ya'll are all in my heart felt prayers.

Mike

Prayers continuing....

by Ron Brown, Friday, December 07, 2012, 15:58 (4315 days ago) @ madbohemian

My hopeful prayers for you and your son everyday.

Brian, you and yours are in our prayers.

by Todd Corder @, Plymouth IL., Friday, December 07, 2012, 16:55 (4315 days ago) @ brionic

If you would please send me an email.

We have tried everything, but haven't been able to cure

by Gary G, Sunday, December 09, 2012, 19:52 (4313 days ago) @ brionic

Dont know what to say that hasn,t been said Brian. If ever faced with this I hope I have your family,s courage.

Prayers continue Brian.

by Wildcat, Flint Hills of Kansas, Sunday, December 09, 2012, 21:07 (4313 days ago) @ brionic

Miracles can and do happen. My son I was bragging on above this post was two months plus premature and his brother was close to 4 months early. Both were supposed to be beset with all kinds of issues but praise God none have developed. Keep the faith my friend!

Will keep you all in our prayers.

by Dave B @, Alamogordo New Mexico, Monday, December 10, 2012, 13:22 (4312 days ago) @ brionic

Prayers for God's healing powers.

We have tried everything, but haven't been able to cure

by Mike P @, Monday, December 10, 2012, 13:42 (4312 days ago) @ brionic

Sorry I didn't see this until now - I was off hunting.

Praying for you all. I buried one son. He knew we celebrate life and would cherish the time we spent together. We don't take much for granted anymore.

Mike p

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