We have tried everything, but haven't been able to cure

by brionic @, Thursday, December 06, 2012, 10:08 (4316 days ago)
edited by brionic, Thursday, December 06, 2012, 10:32

Dashiell. CT scans this week showed more masses. We are trying a carcinoma-focused treatment, and should be able to tell in two weeks if it has had any effect.

There are other alternative options, but time is not on our side. Pam and I are making plans for the short and midterm, to explore and celebrate with the boys, together. We want to delight Dashiell and offer him as many experiences as he desires.

Our eleven year-old has figured it out. Laying with him last night as he gasped and quietly wept was as hard as anything I have ever done. Pam spoke quietly, from the heart, as much to me as to Orson, about finding peace and letting go of fear.

I can't put anything else into words. A coordination of events going back several years has led to to wonder about things I cannot fathom.

Pam asked her friends not to write or say that they are sorry, because we have been the luckiest people in the world to enjoy this boy's awe and wonderment for five years. Every day has been a miracle.

We thank you all, again, for the many kindnesses that you have shown us, and for the strength that you have loaned to us.


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